I would have posted this yesterday, but for some reason I couldn't get the board homepage to load up on either firefox or IE
health department is willing to pay her to go to NZ to be assessed for live transplantDying drug addict refused second liver transplant
Claire Murray is a 24-year-old mother of two who has only months to live if she does not have a liver transplant, but she is being refused a place on the waiting list for a donor organ.
State will pay: Hames
Father will risk all for daughter
Her family knows her case will polarise views because she has abused heroin in the past.
She even took drugs after her first transplant last year to treat acute liver failure caused by 12 years of addiction to amphetamines and heroin.
That donor liver has now failed, and doctors at Sir Charles Gairdner Hospital have told her parents, Michael Murray and Val Milne, they cannot consider her for a second transplant.
Ms Murray's family accepts she continued to abuse drugs after the surgery but argue that the success of the transplant may have been limited because of issues with the surgery and inadequate rehabilitation.
Nationals MP Vince Catania and Labor MP Martin Whitely are campaigning for the mother of Chloe, 5, and Taj, 4, to be given another chance.
Mr Murray said yesterday his daughter had been a happy and healthy A-grade student at a Perth private school before being diagnosed with attention deficit hyperactivity disorder at age 12. She was prescribed dexamphetamines and began abusing the drugs, later moving on to speed.
"We feel one thing led to another, and ultimately her addiction, and that's when our problems began," he said.
Mr Murray said his daughter had been on the methadone program before her transplant and was deemed fit for the surgery but he did not believe she was properly followed up to ensure she did not continue to abuse drugs.
Ms Murray's mother had given up work to support her and she had been clean of drugs for eight weeks.
"She now has three to six months to live," he said. "We're very aware that if Claire goes back on the list it doesn't mean she's going to get one and it's not necessarily going to save her life. But everyone deserves another chance."
Ms Murray said she felt far more prepared and determined to make the most of any chance she was given.
A SCGH spokeswoman said the hospital operated a world-class liver transplantation unit that met Transplantation Society of Australia and New Zealand protocols for eligibility and had exceptionally high survival rates.
It denied that surgical care or post-operative treatment were lacking or contributed to Ms Murray's outcome.
Late yesterday, Health Minister Kim Hames said Ms Murray did not meet national guidelines for a transplant and it was not reasonable to provide an organ to her when there were seven West Australians waiting for their first transplant.
He said 19 liver transplants were carried out in WA last year, and three people died waiting for a new liver.
But he said the State Government was prepared to pay for his Mr Murray and his daughter to go to New Zealand for the case to be reviewed by a specialist experienced in "live" liver transplants, which used a piece of a liver from a living family member.
father take the risk of live transplant for daughter if compatible
Of course chances of getting a live transplant are slim anyway because she has to meet the same criteria as a cadaveric transplant.
And just so you know that this is the West Australian, lets have This
If online comments from this site and elsewhere are any indication, it certainly has polarised peopleDaughter angry dad did not get a chance
LISA CALAUTTI, The West Australian February 26, 2010, 2:30 am
Ellysha Morgan-McArthur can't help but wonder what would have happened if her late father had received the liver that doctors gave to Claire Murray last year.
The young mum is outraged Ms Murray is asking for a second liver while her father died while waiting for a transplant.
Mrs Morgan-McArthur's father, Michael Kane, was in a hospital room across from where Ms Murray was recovering from her first liver transplant.
"Just to know she is going for another one, when my Dad could have just had one," she said. "It could have lasted him another 10 or 20 years. It's just heart-wrenching. You think, 'Girlie that was such a gift the first time and here you are asking for another'."
Mrs Morgan-McArthur's father died one month before Christmas from cirrhosis of the liver and cancer. He had been on the organ transplant waiting list for about five months.
The 52-year-old had battled illness for four years. He would have loved to see his two-year-old grandson Seth grow up, Mrs Morgan-McArthur said.
She said while her heart went out to Ms Murray and her family, she felt sick to the stomach to think her father could have had Ms Murray's first liver if it was found to be a match.
"I can empathise because she has got kids. However, we all make choices, we all make decisions and we all do make mistakes," she said.
"But, there comes a time where you realise that there are only so many you can make and there are other people more willing, or more worthy out there."
Ok, lets get some of the confusion out the way.
She doesn't meet the criteria for being on the transplant list so she isn't. The government has offered to pay her to go to NZ which does more life transplants, making this a special case. Problem is it appears they are wasting their money because she still has to meet the same criteria. The sticking point being she has to be off drugs for a certain length of time, IIRC six months. She hasn't. Doctors suspect she will be dead by then.
Unsurprisingly there are people threatening to take themselves off the organ registrar over this (at least they claim to online) even though SHE ISN'T BEING PUT ON THE WAITING LIST.
Then there are those who complain that organs are given freely and bitching about one potentially going to her are hypocrites. Well actually it is a bit more complicated than that. Whether they know it or not, organs aren't just given to any match. There is still a criteria for selection, so when people donate the organs it isn't quite as freely given (as defined as anyone can receive it), so these people are right to complain that she wants an exception for her to go on the wait list when she doesn't meet the criteria.
People appear shock that some of the transplants recipients are ex druggies? Sheesh we better keep quiet about that or else the transplant list will be down.
Now I have a sticking point
1. Presumably she must have already been drug free for a length of time before the transplant so its tough to blame inadequate rehabilitation. The fact that someone doesn't stay off drugs indefinitely doesn't equal health services were inadequate. Not all treatment works especially in cases where people simply have to take some responsibility for their own goddamn actions.Ms Murray's family accepts she continued to abuse drugs after the surgery but argue that the success of the transplant may have been limited because of issues with the surgery and inadequate rehabilitation.
2. Issues with surgery? I love this generic attack, blaming the doctors who actually helped her in the first place. Could they be any more vague? Which issues with surgery do you blame for transplant failure? Its like they know a lot of conservative Western Australians won't take this well especially with the drug abuser tag, so they try and blame the doctors.
Just for the record, I don't have a problem with being an ex abuser. The problem is a current abuser because you will decrease the chances of a transplant succeeding. Saying you are an ex druggie because you were off it for a short time is about as disingenuous as a man saying he is an ex smoker because he last smoked yesterday.