Alyrium Denryle wrote:if it's about avoiding misery and death in infants, there are more efficient ways to do that.
Not for heritable genetic conditions there is not. Thankfully you do not have to sterilize (usually). All you need to do is test the fetus and abort if necessary. You might not even HAVE to force abort. You just need to show the parent what a child with ALD or Tay Sachs looks like.
The latter point is very true - MOST people will chose not to have that severely disabled a child.
We are going to have to agree to disagree here, as I can not in any way condone forcing a woman to undergo an abortion.
Stipulating that no extant government is competent and sufficiently free of corruption to actually administer a good eugenics program (Sure it would start out just getting rid of things like Huntingtons, Tay Sachs, ALD etc, but it would not be long before arbitrary groups start getting sterilized), why?[/quote]
I base that on the
historical record of what happened last time sterializing people with genetic defects was popular.
If you can force women to abort (or convince them that abortion is the only moral choice, either way so long as you end up getting 100% success rates) and can completely rid the population of a horrific genetic condition in a few generations, why would you not do it? Again, stipulating perfect government.
1) There is not such thing as a "perfect government"
2) Being a carrier for a severe genetic disease may actually be an
advantage in the right circumstances - sickle cell and malaria being the most well-known example. Being a carrier of Tay-Sachs
might grant a certain resistance to tuberculosis (the evidence is not certain, though there is some). Being a carrier of cystic fibrosis may protect against death from diarrheal diseases (again, some evidence but not proven). Until we eliminate malaria once and for all eliminating sickle cell trait in malarial regions may actually result in greater overall harm than coming up with treatments for those who get a double-dose of the bad gene.
Are there some diseases so horrific and so obviously an error we can eliminate them without remorse? Probably. On the other hand, I know I don't know enough speak with authority which ones those are.
Because it is wrong to force a woman to abort her child.
Why, exactly? Bear in mind, while I am technically a Pragmatist, I lean heavily toward utilitarianism and find the concept of actual rights to be a convenient and useful legal concept, not a coherent ethic. My opposition to the pro-life position is based upon a utilitarian analysis of the suffering involved in carrying an unwanted pregnancy. On the same token however the suffering that comes from forcing an abortion must be weighed against the suffering of the potential child. Obviously convincing mom to abort on her own is preferable to strapping her to a table...
Why? Because it's her body you're entering to perform the abortion. It's her (potential) child you are killing. Perhaps I favor the individual over society more than you do. As my ethics in this matter come from my religion holding that up as the source is not going to carry any weight with you, and indeed I am in no way trying to convince to change your position here. I am simply stating mine.
I am also aware that the lives of the disabled are often perceived by the able-bodied to be more horrible than they actually. I am married to a man who, due to a birth defect, has spent almost every day of his life in pain, and you would use that as an argument that he should have never lived -
but he vehemently disagrees with that position! He is the one doing the suffering, not you, and he judges life to be well worth living
despite his hardships.
He wants to live - and regards with horror the idea that anyone with his defect should be eliminated from existence. That's where your argument breaks down. I am not convinced how you value suffering in this context is properly weighted.
One specific instance of which, by the way, has rendered my own marriage childless (for a reason, I might add, that turned out to not be genetic).
You are also a hell of a lot smarter and forward looking than most people.
My husband did NOT consent to being sterilized as a young boy.
Neither did his parents - it was done ENTIRLEY without the knowledge of either him or his family. His birth defect is NOT genetic. It was an example of a slippery slope that moved from "prevent grievious genetic disease" to "sterialize anyone less than perfect". There was no goddamned
reason to do that - he would have been at no greater odds of having a defective child than anyone else AND he would have made a great dad. And that was taken away from him forever before he was even a teenager. WHY? Do you think that rendering him sterile didn't cause him suffering, when he wanted children? Not telling him sure did - he didn't find out what had been done until he was nearly 30. So he spent years of his life imaging starting a family when that had been taken away. You think that didn't hurt? It would have been kinder to squash all notion of that from childhood, wouldn't it? But the same jackasses who though giving a child a vasectomy on the sly was the "best thing to do" also though
not telling anyone was the best thing to do - and people wonder why he doesn't trust doctors!
Governments and societies have done much evil in the name of eugenics.
Which is why there is almost always an issue with idiots and bastards fucking up things that otherwise should be done.
Which is why some things that might be done in a perfect world shouldn't be done in this one.
. I view the occasional birth of a child with a terminal illness to be a lesser evil than laws forcibly ripping a fetuses from the wombs of an unwilling women.
You do realize that most abortions are chemical right?
Except that by the time you get to amniocentisis and chorionic villi sampling
it's too late for a chemical abortion. Chemical abortions work for children who are unwanted period - if you wait for the other testing because the baby is wanted THEN find the defects the pregnancy will be far enoug along to require a minor surgical procedure.
Last time a society deemed certain human beings as not worthy of life it started with "just" the handicapped and within a few years 12 millions people of a variety of ethnicities, most of those individuals being normal and healthy humans, wound up slaughtered like cattle.
Godwined yourself pretty fast...
It is, nonetheless, a historical fact - the Nazis started with the handicapped and moved on to slaughtering millions in the name of perfecting the human race. It is entirely relevant to the topic at hand.
That was in an era when populations genetics was in its infancy, genomics and genetic diagnostics was not extant at all, and when the perversion that was social darwinism was popular. Somewhat different situation today--though I will grant that I would never trust elected politicians to make the decisions.
And we still don't know as much as the average person thinks we do about genetics, diagnostic technology is still evolving, and
social darwinism is still popular!
Damn right I don't trust the elected politicians to make the decisions. Last time around, the doctors didn't do too well, either. As I have said, the historical record is pretty fucked up on this issue and a LOT of pain and suffering was caused. I am not convinced the pain and suffering avoided would balance out the pain and suffering caused. I'm not pulling that out of my ass, I'm looking at history. It got REALLY fucked up last time around, why should we be eager to try again?
Particuarly when we have instances where securing voluntary cooperation has good results.
I don't think Tay Sachs is a good thing - it is, in fact, a very bad thing - but I feel that extracting fetuses from women who choose not to abort, in the long run, will result in greater harm than the unfortunate few who are born and die of this disease.
If you abort carriers and those with the disease, you can rid the entire population of it in a generation or two (one with perfect coverage, if it is incomplete, you will need to wait a few more until Tay Sachs is no longer a problem). Jewish couples who dont want to deal with the abortions can always use IVF with pre-implantation diagnostics to chuck the fetuses carrying the gene.
Are you even aware of the carrier rate of TS in the general population?
It's one in 250. That means to eliminate ALL carriers of TS you have to abort
one in every 250 babies conceived for an
entire generation. How many millions will that be? Have you not slid down the slippery slope into a pile of millions abortions just there?
Genes for rare recessive disorders are actually much more common than people think
Of course, not all of the abortions need be forced either. I am pretty sure a video showing an afflicted child will tend to convince most fundies even.
Nope. Won't (in my expeirence) budge the Fundies.
It will spread to preventing carriers from having children at all which, because the three populations that have the highest rate of this disease have historically been either oppressed or the target of genocide or both, is going to cause social and political problems.
Have you anything but a slippery slope?
In this instance, the slippery slope
actualy occurred in history, it was not a hypothetical.
With adequate safeguards (such as removing elections from the equation) you wont have that problem. The decisions could in principle be made by a body elected from the AMA (physicians), NAS (population geneticists), and the International Association of Bioethics. With the ethicists having veto power when voting as a block.
Yeah right - how about we have a committte of severely disabled people with veto power instead? Shouldn't it be cripples making decisions for cripples?
As for people not having the wisdom to act in the best interests of family/society/species - the rate of Tay Sachs among the Ashkenazim has dropped 90% worldwide through voluntary actions on the part of informed adults.
A matter of time. Soon (in generational terms) all they do is increase the proportion of carriers. Eventually, they will need to start removing carriers, the only way to do that is to prevent carriers from being born, or Tay Sachs will skyrocket.
One in 250 people walking the earth today is a carrier. That's a fuck of a lot of carriers you're talking about. A lot of births to be prevented.
That's for just ONE genetic disease - things like cystic fibrosis have just a high a carrier rate. Who will be left to continue the species?
So unless you start screening EVERYONE ON THE PLANET for this disease you're not going to eliminate it by dicking around with the reproductive rights of known carriers.
That is exactly what I want. Genotyping is becoming very very cheep, batteries of tests can be done on one blood sample.
We do not yet have the science, or the cheap technology, to make that feasible for the world population.
Gene therapy is also being investigated. This holds out hope for being able to one day treat infant-onset Tay Sachs.
Frankly, I would prefer to eliminate the disease from the population. What do you think is cheaper? You can run samples for almost 384 patients and 31 diseases per patient for just a little more than 2000 USD. It is amazingly cheap.
Not if you have to run
6 billion samples. The money isn't there for it.
Compare that to having someone being continually dependent on gene therapy.
Having diabetics continually dependent on insulin sucks, too, but it's better than letting them die, isn't it?
Gene therapy might be a one-shot treatment, after all, we don't know yet if it's that or requires continual doses.